Predictors of quality of life among parents of children with chronic diseases: A cross-sectional study

Filiberto Toledano-Toledano*, José Moral de la Rubia, Laura A. Nabors, Miriam Teresa Domínguez-Guedea, Guillermo Salinas Escudero, Eduardo Rocha Pérez, David Luna, Ahidée Leyva López

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

10 Scopus citations

Abstract

Quality of life (QOL) is a key aspect of the health care process for children with chronic diseases and their families. Although clinical evidence regarding the impact of chronic disease on children exists, few studies have evaluated the effects of the interaction between sociodemographic and psychosocial factors on the family caregiver’s QOL, indicating a significant gap in the research literature. The present study aimed to identify the predictors of the QOL of parents of children with chronic diseases. Three parental sociodemographic predictors (age, schooling, and family income) and four psychosocial predictors (family functioning, social support, depression, and resilience) were examined. In this cross-sectional study, 416 parents of children with chronic diseases who were hospitalized at a National Institute of Health in Mexico City were interviewed. The participants completed a sociodemographic variables questionnaire (Q-SV) designed for research on family caregivers of children with chronic disease. The predicted variable was assessed through the World Health Organization Quality of Life Questionnaire. The four psychosocial predictors were assessed through the Family Functioning Scale, Social Support Networks Scale, Beck Depression Inventory, and Measurement Scale of Resilience. The regression model explained 42% of the variance in parents’ QOL. The predictors with positive weights included age, schooling, monthly family income, family functioning, social support networks, and parental resilience. The predictors with negative weights included depression. These findings suggest that strong social relationships, a positive family environment, family cohesion, personal resilience, low levels of depression, and a family income twice the minimum wage are variables associated with better parental QOL.

Original languageEnglish
Article number456
JournalHealthcare (Switzerland)
Volume8
Issue number4
DOIs
StatePublished - 2020

Bibliographical note

Funding Information:
Funding: This work presents some results of the research project HIM/2013/019/SSA.1141, Measurement and assessment of resilience in pediatric chronic disease; main researcher: Filiberto Toledano-Toledano. The present research was funded by federal funds for health research and was approved by the Commissions of Research, Ethics and Biosafety [Comisiones de Investigación, Ética y Bioseguridad], Hospital Infantil de Mexico Federico Gómez National Institute of Health. The funding agency had no control over the design of the study; the collection, analysis and interpretation of the data; or the writing of the manuscript.

Funding Information:
This work presents some results of the research project HIM/2013/019/SSA.1141, Measurement and assessment of resilience in pediatric chronic disease; main researcher: Filiberto Toledano-Toledano. The present research was funded by federal funds for health research and was approved by the Commissions of Research, Ethics and Biosafety [Comisiones de Investigaci?n, ?tica y Bioseguridad], Hospital Infantil de Mexico Federico G?mez National Institute of Health. The funding agency had no control over the design of the study; the collection, analysis and interpretation of the data; or the writing of the manuscript.

Publisher Copyright:
© 2020 by the authors.

Keywords

  • Children
  • Chronic diseases
  • Depression
  • Family caregivers
  • Family functioning
  • Mexico City
  • Psychosocial variables
  • Quality of life
  • Resilience
  • Sociodemographic factors

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